Last Sunday was Mother's Day. What a special day that was for me. My husband makes sure the kids give me a special day. I had breakfast in bed on Saturday since Jeremy leaves so early on Sunday mornings. It was perfect! A bagel, sliced apple, and a glass of orange juice. I know I mention this a lot but I sure am blessed to have these five blessings in my life. God will always be first, Jeremy is second, and my kids are third. How they make me laugh!!!
We finally had some warmer weather this week and the kids enjoyed much more free-time. For the most part they finished school. There are always a few math lessons, and reading to be done but they are done well before lunch. Becca has been keeping a watchful eye on a robin's nest. One of the babies was out of the nest but still not taking to flight yet. Becca was thrilled to see this bird up close.
Wednesday was our closing ceremony for AWANA. I was so proud of all of my kids. Micah earned the Timothy Award this year. This means he memorized every verse of every section of every AWANA book! This was not easy and he was grinning as he was awarded his trophy. Becca finished her book and much of the extra credit sections too! Benjamin also finished his first Truth in Training book as well. It was a great evening.
This year was Kyle's second year to help in AWANA. He assists Jeremy with game time. He loves it and Jeremy enjoys seeing Kyle with the kids! Kyle had a companion in the pew as well. This marked Jeremy's 14th year serving in the AWANA ministry. He truly loves kids!
We got up bright and early Thursday morning and headed to Pittsburgh at 7am for a second opinion for Mariah. After reading countless websites and having conversations with other moms, I have known for a long time that our beloved endocrinologist was not exactly a great fit for Mariah.
We arrived at my parent's house at 10:30am and the kids went straight out to the yard to play. Let's just say we were glad to arrive. Mariah still is not a good traveler.
While the kids enjoyed "playing", Jeremy and I headed to Pittsburgh with Mariah. We crossed the Fortieth Street Bridge and were there in about 40 minutes.
What an amazing facility. This hospital is new and WOW!!!! We know it since Ben also goes here. Our appointment was for 1pm.......Mariah's naptime!
After spending an hour with two endocrinologists and another 45 minutes with a nurse practitioner, we were sent to a nurse educator down the hall. This is when it all caught up with Mariah. I noticed her swaying on the gurney. Sure enough, she was asleep!
So I helped her lie down. Poor thing was so tired!
Here we met with a urologist (they have a team approach to Mariah's care). We had no idea we had this appointment with the urologist. It just so happened to be Ben's urologist! What a blessing!
I have an appointment with Mariah at the pediatrician's office this week. I need to see if our pediatrician will write a letter to our insurance stating that it is medically necessary for Mariah to be seen out of state.
These doctors were amazing. They lowered her medication and told us it was just too strong. This may be the reason for elevated blood pressures. We were taught many things. We were told the safest place for Mariah is at home in the case of an illness. Unfortunately, we know more about her condition than most health care providers, including doctors. That was a little humbling. We would love to switch to Pittsburgh. This new endocrinologist also said she would be happy to see Ben there as well.
While at the hospital, this is what was happening at my parents' home:
Yes, my dad taught Kyle how to drive a stick shift! He only had trouble finding third gear.
Micah was thrilled to drive the new quad. Becca and Ben were riding the go-carts. (Sorry Ben, no picture! Not sure how that happened. Maybe Jeremy took a picture on mom's camera.)
It was safe to say that Mariah did not like the quad or any thing else that was noisy. She often ran when she heard them come near.
The hospital was terrific and gave us so much information! I wish we had this information months ago. I knew a lot since I have researched almost every night for months. But wow!!! Impressed would be a gross understatement!
Mariah loved the train/trolley exhibits!
And the Lego replica of Children's Hospital of Pittsburgh.
She made the doctors and nurse a little anxious with her stunts! She just wanted to jump off of the stool. That is what it is for, right?We walked back in the door of our house at 11:45pm. It was a very long day. Her appointments took 4 1/2 hours.
Friday morning was our one year post-placement report for Mariah's adoption. Our social worker came at 11 and left about 12:30pm. Hard to believe it is almost a year!
Trumpet lessons were at 2pm and our day was slow after that!
I need a vacation! I get weary from the phone calls about insurance, labs, appointments, and just generally people not doing their job. Why do I have to get involved? Sometimes it feels like we are fighting the world. Then I have a wake-up call and realize that this is what I am called to do. I am meant to advocate for our children. God put me in this exact place at this exact time for a reason. I need to find the joy in these circumstances. Our kids depend on me for this reason.
The phone calls are non-stop and the paperwork is never-ending. But the love I receive from those five blessings is more than worth it all. I love serving the Lord with all my heart! I love being Jeremy's wife. I love being a mom.
Lord, help me when I fail. Help me to seek your face every minute of every day. Help me to seek wisdom from you and none other. Help me to be a better wife, mother, daughter, sister, and friend.